Seth, Shannon, Piper and Quinn Dunlop
The story of our little family and our modern day journal

Friday, April 12, 2013

Update to our modern day journal




  • Piper loves dance, preschool, the color pink, reading, her friends, candy and watching shows. She is tender, smart and so kind and caring
  • We just finished our first chapter book, Charlotte's Web
  • Quinn says "mench" a lot. We are not really sure what it means
  • Quinn got his first hair cut, and is being a really bad sleeper
  •  Every Friday night we try to go on a family date. I look forward to it all week
  • Seth is working for Meta Design and healing and getting stronger and healthier than he was pre surgery
  • We have a gold fish named Malooga. He is getting huge
  • I am really hoping Seth and the kids get me a dog for Mother's Day
  • I love teaching the childbirth educations classes at LDS Hospital.
  • I am training to run Ragnar with my co-workers and boss in June. I ran 4.20 miles on Sunday. I was so excited. I have lost 10 lbs. I LOVE running
  • Being a mom is the most fun I have ever had
  • If you are looking for us we are probably in the backyard, Red Butte, or a park. 
  • We are going camping for Seth's birthday in May. I am lobbying for Canyonlands.
  • Can't wait for Seth to start riding again. 
  • Looking forward to super hot days followed by a relaxing evening in the cool of our backyard
  • We are going to our favorite little island this September. Seriously can't wait!!


Mini Irish mafia

Watching Life Flight out Seth's window

My beautiful son

Egg hunt in our backyard


Park City Easter egg hunt.

St. Patrick's Day parade.

My beautiful boy with my beautiful nephew in the back ground

Best friends jumping



First haircut




Woo hoo for Cookie cutters

A lovely Easter Sunday. Ham, orange rolls and lots of candy

I went to pick Piper up from school one day and she was working the bake sale. She is so amazing.

They really do love each other

Favorite bench in the valley

Salt water sandals = summer time

Piper picked these flowers for me at the park. She loves dandelions

Piper asked me to send this photo to Santa Claus


The kids and I bought daddy an early birthday present. We took him to City Creek and totally surprised him. The store clerk walked up to him and handed him this box and said happy birthday. He thought they had the wrong guy. He looked over at me and I was crying and he knew.

Piper got herself dressed for dance. I love the black rubber boots with the pink dance attire. She is so fashion forward

Bath time


The sun has shone on the Dunlops

If you ever make a mistake and you want to kick yourself for being so dumb, just stop and think about this story. It will make you feel better about yourself.

I am not a gambler. I pay my bills 2 weeks early. I don't take chances. I show up early and I do what I'm told. That's my personality.
Well what the hell happened this last year Shannon? I screwed the pooch badly. I took a big risk and we lost big time.
I work for Intermountain Healthcare. I have wonderful health insurance. I only have to work part time to get benefits. I feel truly blessed to work for such an amazing company. This past November I decided to just enroll the kids and I. It was only $100 extra per month to add Seth. I absolutely hate paying for things you don't need. I run around the house turning lights off, I would never in a million years buy bottled water. I wouldn't say I'm cheap, but rather just frugal.
Seth rides his bike 10 miles a day. He has never needed to go to a doctor. He is a tough healthy young guy. This was my insane thinking.
Well Jan. 21 hit, and a shit storm of health problems hit. To make a long story short, we just got our final bill after all doctor visits, major surgery, 4 days in the hospital for a grand total of 42,000+ dollars. Holly hell.
I tried everything. I tried appealing to my health insurance company, applying for medicaid, blah blah blah. Denial, denial, denial. I have paid into the system my entire life. I have paid for thousands of people to have their babies and receive medical care. We have never asked for a dime. This made me feel better about asking for help this one time.
So Intermountain healthcare has a financial assistance program. This was our last saving grace. We had to give them every financial document conceivable. Our income was over the limit for help but because of our enormous bill, we qualified, and we qualified BIG TIME.
We found out yesterday that we qualified for an 86% discount.
Out of our $42,000+ bill we will have to pay $5600.00 and we will be paid in full.
I have literally had chest pain and been sleeping 3-4 hours a night.
It was pretty incredible that on Wednesday when we got the news I could breath and the last two nights I have slept.
I am so incredibly grateful. We have majorly been saved.
If you or anyone you know is uninsured, always go to an Intermountain Healthcare facility. They have to help people in the community financially because of the tax right offs they get from the federal government.
When you have a horrific situation happen to you like we have had, you see the beauty and you see the ugly in people.
My best friend brought me coffee and sat with me while Seth was in surgery. I hit the jackpot when we became best friends.
A doctor that took care of Seth who in my eyes is an angel, felt so bad about our insurance situation, he handed me a wad of cash to help pay for our bill. He asked that I continue to care for his patients. WOW! The ER doc that initially treated Seth at LDS Hospital, personally walked us out with his arm around us and said he wished he could take care of people like us more often. People are amazing.
Seth and I have never been on the receiving end of medical care, except for the birth of our children. It has been a very good experience.
Seth's family was and has been so incredibly supportive. Thank you!

I made a huge gamble, and it was so very stupid.
I have learned from this mistake and that is what you have to do when you screw up. 
Seth is doing great. He is healing and his clotty blood is being treated and watched very closely.
We are loving life and having such a wonderful time raising these two kids together.
Funny how I was just a young girl not long ago smitten for this 17 year old boy.
I have moments all the time when I can't believe I am responsible for these two lives, and running a house. I have this wonderful person that I am doing all this with. Life is full of surprises. I am so happy it's Seth that I am encountering all these surprises with.



Wednesday, February 27, 2013

The news we have been waiting for

Monday morning Seth had a bone marrow biopsy. We got to go back to our new hang out, the Utah Cancer Clinic. Dory is doing well by the way.
Horrible horrible horrible! I couldn't watch. I sat with Dory and sobbed. It took 10 minutes and we were done. Seth never complained. I already knew he was strong, but WOW. Waiting for the results was awful. We haven't slept much in the last 2 days. Tonight just before 6 pm we got the call we have been hoping for.
Dr. Chambroluli called Seth and told him he has thrombocytosis. His platelets are producing abnormal cells. He doesn't even have the polycythemia vera that the Dr. thought he had. After his spleen is removed they will check his platelet count and if they are out of wack he will take a pill called hydroxy urea. Not a big deal at all.
 The best part about this news is that he 100% doesn't have CANCER and he does not have fibrosis of his bone marrow which would have meant he needed a bone marrow transplant.
I can breathe. I can sleep. This also means he is going to have his spleen out on Tuesday most likely. He will also have the varicies fixed around his stomach. A bit of a riskier surgery due to his clotting.
If next Tuesday goes well we will be in the clear.
Today was the exact news I have dreamed of getting.
I love my husband more than anything. Everything about him is good. He has been so strong through out all of this.
We love you daddy!

Thursday, February 21, 2013

My sweet Seth

Seth is amazing. He has seen more doctors and been poked more than anyone should ever have to. So update.....Seth was supposed to have his spleen out this coming Tuesday. It's not going to happen so soon.
We saw the hematologist today, Dr. Chandramouli. I really liked him. He is the doctor who knows the most about Seth's condition, and who would have the most answers, and he did. His clinic is at the Utah Cancer Center. What the hell!! I sat in the lobby with my big black glasses on crying and saying to myself, how are we here. Piper and Quinn and I met Seth for his appointment. They have a really cool fish tank. Two Dory's live in it. (Finding Nemo)
Once we started talking to the doctor, things got better. Seth does not have cancer. I repeat he does not have cancer. That was for me, sorry.
The type of myeloproliferative disorder that the doctor thinks he has (there are 4 types), has no link to leukemia. I probably sound like rainman asking about cancer to these doctors, but he specifically said "you and I have the same risk of developing cancer as Seth does with this condition."
Of the 4 types of myeloproliferative disorders, Dr. Chandramouli thinks he has polycythemia vera. If you are like me as soon as you are done reading this post you will look it up on line. Only read information from www.nci.nih.gov.
Seth has to have a bone marrow biopsy on Monday. It will be done in the clinic. Woo hoo I get to go visit Dory again. He will take a mild sedative and have a needle stuck in his hip. Awesome huh. By Wednesday this will give us the exact result as to which type of myeloproliferative disorder he has. If he does have polycythemia vera, the treatment will be a urea pill that he will take to surpresss his overactive bone marrow production of red blood cells. Doc says you live a totally normal life and your mortality rate is no higher than you or me. The bone marrow biopsy sounds horrible but he said his PA will do it and it is not that big of a deal. Whatever guy!!
This myeloproliferative disorder is a mutation of the JAK-2 gene. Just bad luck. It is not genetic so thing 1 and 2 don't have it. Seth has done nothing to predispose himself to this mutation and it wasn't a gift from his parents. Just plain old bad luck.
They have only discovered the mutation in the last 4 years. God I love nerds who spend most of their lives with their heads in a book or in a lab. Thank you from the bottom of my heart.
Dr. Chandramouli called Dr. Fujita and recommended we wait another week on getting the spleen out. If Seth has one of the other 3 of the 4 types of myeloproliferative disorders, it might be better to leave the spleen in. Seth hates this idea. He is in pain and wants the jerk out. He was quite certain that Seth does have polycythemia vera though. In that case the spleen will come out and Seth will just take a pill to suppress the bone marrow production of red blood cells.
Seth will then go on being completely awesome and hot and live to be and old man and drive me crazy when he is old and senile.
This has been a horrible time in our lives, but we have clung tight and loved each other tons. Our poor children have been patient and so sweet. They have had to go to way too many doctors appointments and see their mom cry way too much!
Thank you so much to those of you who have been there for us. I will keep you posted.
We love you dearly!


Monday, February 18, 2013

Family Update February 2013

March is in 10 days and I am truly hoping it treats us better than January and February. Life is scary and rough right now. Seth has been diagnosed with Myelo proliferative disorder. His bone marrow is producing way too many red blood cells which has created blood clots. He has a clot in his spleenic vein. His spleen is so enlarged that it has to come out. He is in constant pain. After the spleen is removed we can address the bone marrow issue. We are told it isn't cancer, but that it can turn into cancer. OK holy total panic is what I feel 24/7. Oh and did I mention that Seth does not have health insurance. At this point I don't even care. The amount of medical bills is going to be so incredible. I just want my husband to be ok. I want my children to have a father, and I want to have my Seth until I am an old woman. How is this our life. Not in a million years did I ever conceive that we would be facing something like this.
In the meantime we are trying to stay positive and enjoy every moment we have together.
We snuck away to Hebgen this weekend thanks to Seth's brother's family. We are so grateful for sharing their amazing Hebgen gift. We love this place more than anything. It is magical! Just what we needed. 


This is "the chair". I love this picture more than words can say.

Piper's first time snow shoeing. She was amazing.

See why we are so crazy about the place. LOVE LOVE LOVE!!



Look at my baby. WOW!

Our Valentine's date. I have been thinking back to our wedding vows, and that sickness and health portion is happening right now.


Piper and aunt Bug went for a Pottery Barn tea party date.


Preschool field trip

Magical box

Ronan love Seth. So do I.

We love practicing make up and dress ups on cousin Ronan


Piper loves dance

Oh please winter go away

Hiking the Utah foothills

Quinn and I skied together for the first time today. Laura, Max and Quinn and I went for a ski. Mother/son ski date. One of the highlights of my life.

Quinn watching me walk away

Sascha, Joel, and Seth and I had dinner. Lovely!